Wiggle wiggle pinky toe!

I’m laying in bed, slowly waking up and adjusting my eyes to the winter sunshine as I glance out the window, when I decide to do some visualization exercises with my legs and feet. I go through the usual exercises that I’ve been doing as frequently as possible in my free time: flex my feet, bend my knee, rotate my legs in and out. Since my accident, I don’t get any movement in my lower body when I do these exercises but I’ve stubbornly and consistently kept at it. The reason why everyone – from the nurses in the ICU to my spine surgeon to my acupuncturists – has emphasized the importance of visualization is the belief that there is enormous value in sending a signal from the brain to the lower body and by thinking and trying to move those limbs, one can repair the neural pathways and reestablish that damaged connection.

This time though, something feels different. I lift myself up to sitting with my legs straight ahead of me on the bed and I throw off the covers to get a better view. Something just feels different, like there’s movement and it’s not just a spasm or reflex (which I have frequently as well). I stare at my right foot and see that my pinky toe is slowly moving in and out. To make sure this isn’t a fluke, I stop and do nothing. Pinky toe doesn’t move. I try again and there it goes, immediately responding to the signal I’m sending. This can’t be right, it’s been months and months of having my legs and feet dangle lifelessly as I’ve dragged and lifted and bumped and dropped them from place to place in this strange new world of life post-Spinal Cord Injury.

I do it again, this time to confirm that what I thought I had been seeing could actually be real. “Wiggle little toe, wiggle”. Wiggle wiggle it says, as it dances back and forth, proving to me that for the first time in almost six months, I have regained motor control of a part of my lower body.

What a development for the new year, what a way to show me that 2013 really will be a special year, one in which I hope to achieve all of my recovery objectives and kick this damn injury’s ass! It’s only one pinky toe, on only one foot and it’s still a long ways to go I’m sure before I can move my legs around like I used to, but that pinky toe gave me so much hope for the future of my recovery. To go from feeling that moving any part of my lower body is the equivalent of moving a table with my mind, to then finally seeing a flicker of hope in a tiny little pinky toe is an indescribable moment. Now, I can move this toe 10,000 times if I have to until it leads to me being able to control my other toes and then my foot and then my ankle and then my legs… My fire of recovery has been fueled, my conviction has been confirmed and my dream to reach my ultimate goal has entered into the realm of reality.

Want proof? Here it is:

Comments

253 responses to “Wiggle wiggle pinky toe!”

  1. Melissa Leebove Avatar
    Melissa Leebove

    I am jumping up and down at this! It’s ironic what a small thing it seems to be, but what a HUGE step it truly is. This is just the beginning. Congratulations and a very happy start to the new year!

  2. L. Palmer Avatar

    Congratulations! When we take walking for granted, it makes us forget the importance of a single toe.

    1. arashbayatmakou Avatar

      Yes I would give anything right now to walk and I will never take it for granted again. -AB

  3. The Blissful Adventurer Avatar

    Reblogged this on The Blissful Adventurer and commented:
    One of the most inspirational posts you will read all year. My dear friend Arash just got Freshly Pressed for a piece of tremendous courage. Please follow this talented young writer and share in his journey to recover from Spinal Cord Injury. Cheers to you Arash. I am so very proud of you!

  4. The Blissful Adventurer Avatar

    Get ready for the swarm of comments over the coming days Arash. Your story is one of hope and conviction that will bring those needed tenets of success to people around the globe. Fine work my friend!

    1. Harold Partain Avatar

      You are so right there Michael. I read the posting and cried for joy. Arash, you are an inspiration to us all. Thanks, Michael for re-posting on your beautiful Blog.

  5. From an ink smeared page Avatar
    From an ink smeared page

    Fantastic news! It’s amazing that power of belief can make things happen 🙂

    1. arashbayatmakou Avatar

      Belief is key, you’re right. Thanks for reading -AB

  6. deborahbidwell Avatar

    Reblogged this on DeborahBidwell's Blog and commented:
    congrats on your little toe, just to give you a little hope, my husband was crushed by a crane on may 1st 2007, when he walked, yes I said walked out of the hospital 2 weeks later, mind you the walk was from wheelchair to vehicle, he was called and still is the walking dead man, he has a 10 level fusion in his back, life is forever changed for him, and us, BUT he can walk without assistance he can drive, he cant work, but he is thankful every painful day he is still alive, yes he deals with high levels of pain daily but he would rather that than the alternative, keep up the good work, and you will get there I send you all the positive white light of healing that I can muster 🙂

  7. Rebecca PT Avatar
    Rebecca PT

    Yay! Keep wiggling, Arash! 🙂

    1. arashbayatmakou Avatar

      Will do Rebecca -AB

  8. edebock Avatar

    That is absolutely fantastic!!!

    1. arashbayatmakou Avatar

      My thoughts exactly 🙂 -AB

  9. Christine Avatar

    Congratulations! I just followed your blog because I would love to watch your progress. Please keep us up to date and best of luck to you!

    1. arashbayatmakou Avatar

      I’m happy you’re reading Christine. Thanks! -AB

  10. amelie88 Avatar

    Wow, you must be over the moon! I’m not sure how you got a spinal cord injury (I’ll go read about that in a moment) but being able to wiggle a pinky toe on your foot to not being able to move/feel anything after months of trying must feel like you climbed Mount Everest! This must feel like such an accomplishment. I wish you much luck on your road to recovery.

    1. arashbayatmakou Avatar

      It’s a certainly start to get up towards Mt Everest but I have a long way to go still. You’re right though, it’s a big accomplishment nevertheless. Thanks for reading -AB

  11. Jeremy Shane Avatar

    Just ran into your article on freshly pressed. Good luck! Very inspiring!

    1. arashbayatmakou Avatar

      Thanks for reading Jeremy -AB

  12. Playamart - Zeebra Designs Avatar

    congratulations! i am so proud of you/for you!

  13. It's only P! Avatar

    How times have changed! Some 25 years ago, as part of a sales program, I watched a movie about a guy who crashed in his small aircraft. Doctors first told his wife that if he came round at all that he would be a vegetable. Well, they were wrong about that. They were also wrong that he would never walk again, because he set himself a goal that he would walk out of hospital, no matter how long it took him. This whole thing was based on a true story. And walk he did, well, three steps or so (out of hospital). You’ve probably seen the movie. 😉 (Morris E. Goodman)

    Apart from visualization, feeeeeling yourself go through the process, is also immensely powerful.

    I can see you walk those three steps. At least.

    1. arashbayatmakou Avatar

      What a story! Thanks for sharing as I hadn’t seen the movie. It seems that doctors are wrong quite frequently especially with prognoses and giving people real hope of any kind. Feeling the process is absolutely powerful, you’re right. Thanks for reading and I look forward to those three steps… -AB

  14. Jenny Avatar

    Beautiful. Never give up. One small step for mankind! I think often of Captain Scottie Smiley (his book is HOPE UNSEEN) who returned from Iraq with a debilitating injury but with love of family and friends, his faith in God, has never given up and became the the U.S. military’s first active blind officer. Faith. Courage. Trust. Love. One step at a time, one toe at a time, one day at a time.

    1. arashbayatmakou Avatar

      Wow what a great story of Scottie Smiley. I’m happy you told me about him. And I agree with you that it’s all one step at a time. Thanks for reading -AB

  15. Robyn Lee Avatar

    Arash — congratultions! 👍You so deserve this recognition and I now LOVE WordPress more than ever for selecting your blog to feature on their Freshly Pressed Edition!! Your blog following is going to really soar now ~ and with that comes increased collective healing energies fueling your recovery. I tweeted your blog just yesterday with this very concept in mind — and now… JUST – So thrilled for you my friend ~ Love and Light, Robyn 💐

  16. Mike Avatar

    Yes!! What a great triumph. A true profile in courage.

    1. arashbayatmakou Avatar

      Thanks for reading Mike! -AB

  17. Lesley Anderson Avatar

    Great work & great start to a new year!

  18. George Weaver Avatar

    To watch that pinky toe is to believe in the power of the human will. I believe you will walk because you will it to be so. Thank you for sharing this victory!

    1. arashbayatmakou Avatar

      Thanks again George. I hope to share many more victories in the future -AB

  19. kiddoctorlr Avatar
    kiddoctorlr

    Absolutely the most positive, inspring blog I have read in a long time. Rather than complaining about what has been lost, you are choosing to be grateful for what remains…and hopeful for what will be restored. God bless you, friend. Your positive energy will naturally flow to others who stumble upon your wonderful blog. Thank you…thank you..thank you!

    1. arashbayatmakou Avatar

      Those are such kind words, thank you. I am indeed trying to be as hopeful and positive as possible because honestly, what choice do I have??? I don’t see it any other way. Thank YOU for reading -AB

  20. sistasertraline Avatar

    Dear Arash, today has been a pretty weird one for me, so it is only right and fitting that I end it watching a video clip of your magnificent little toe. It made me smile. God bless Sx

    1. arashbayatmakou Avatar

      Glad my toe could take away some of the weirdness of your day. Keep smiling -AB

      1. sistasertraline Avatar

        You too. Looking forward to seeing its neighbours join in the party!
        Humbled by your courage, you are quite the inspiration.
        Big love from a snowy London xx

  21. midnightdemons7 Avatar

    hi there, I also have a SCI. I am recovered almost 90 percent because the surgery was done quickly. I am glad you are moving your toes. that is a huge step!! time and patience is what you need to get through this. just know you are not alone in this.

    1. arashbayatmakou Avatar

      That’s great to hear. Congrats to you. If you feel like sharing more of your story with me I would be honored and happy. abayat491@gmail.com Thanks for reading -AB

  22. Gracie More Avatar
    Gracie More

    Keep wiggling… a great start to 2013 for you:-)

  23. artsychicksw Avatar

    I just now started to read your blog because of this Freshly Pressed entry. I realize that I don’t even know you, but I find myself REJOICING for you and your amazing progress! Yes, it’s “just” a pinkie toe, but it is indeed purposeful movement that you haven’t had in six months!! What a blessing this must be to you…and a true inspiration for the many of us who read and feel your story. I’m so grateful you included the short video of that toe moving…helps us share in the joy! My best wishes to you…and Peace to your heart, Sara

  24. canwetalk47 Avatar

    Reblogged this on canwetalk47 and commented:
    Hi There ,

    Please read my blog I think you and I have alot to talk about Keep doing what you are doing everyday you will get better !!!! Always, Lori

    1. arashbayatmakou Avatar

      Hi Lori, I just read your blog and yes we do have something in common. The medical system seems to have abandoned your husband, much as it has done with me. What’s your next step? How do you move forward from here? Best wishes to you and your husband -AB

  25. merindyandjason Avatar
    merindyandjason

    Yay! Happy Dance!

  26. Robyn Lee Avatar

    Reblogged this on THROUGH THE HEALING LENS and commented:
    Meet an amazing young man who is suddenly faced with the greatest challenge of his lifetime . You will see that he exemplifies all that is grace, fortitude and courage. It is my great honor to introduce you to Arash, and my prayer that you support him here in his courageous healing journey by seeing him through your “healing lens”.
    Much Love Always
    ~ Robyn

    1. Paul Mazzaferro Avatar

      Great Robyn…..Arash, fight the good fight and believe!!! God Bless you

  27. linda adelaide Avatar

    your story is so incredible, so moving and uplifting, i am eternally grateful to robyn for choosing to reblog it. i NEVER reblog anything and think i might this little movie of you moving that pinky of yours. what a thrill, i had tears running down my cheeks and watched it twice. it’s wonderful! keep up the good work, sharing every step of the way. there’s a huge amount of support out here for you, my friend.

    peace and healing be yours,
    linda

  28. Shards Of DuBois Avatar
    Shards Of DuBois

    Aww, I’m SOOO happy for you, and I don’t even know you. But I can tell by your post you have HOPE again, which is half the battle. Keep trying, Keep believing, you can do it! and may God give you the strength to face each day!!! WOOT WOOT!!!! 🙂

  29. RebuildingALifeWorthLiving Avatar

    I happened to stumble upon your post, and without knowing what was going on, I was wiggeling my little pinky toe with you cheering loudly in my head, (that was quite a ruckus, mind you!)! I am constantly amazed at the power of the human body and the amazing will we can have to overcome adversity! I raise my cup of tea to you! Keep up the great work! Here’s to an amazing year full of hope, joy, love, laughter, tears, and the power to overcome! Might I suggest getting your dancing shoes ready for you to celebrate…

  30. artbyimi Avatar

    I volunteer with stroke victims and the most stubborn and determined ones are the ones that prove the doctors wrong! Good luck, and congratulations!

  31. victoriaaphotography Avatar
    victoriaaphotography

    Congratulations Arash,

    Robyn Lee gave me a link to your blog and I just….know….you’re going to be an inspirational person to follow.

    “One little wink of that tiny toe,
    Is the start of others waving to & fro.
    Other toes waving in the breeze
    will lead to more movement with greater ease,
    More movement as this year goes by,
    Will have you soaring up to the skies.”

    The Power of the Mind is unbelievable in it’s Strength – shame we only use 10% of it (so they say). I can attest to this power myself in overcoming Chronic Pain.

    1. arashbayatmakou Avatar

      Sorry to hear about your chronic pain Victoria. And what a great poem! Thanks for sharing with me. All I have right now is an unwavering belief in the power of the mind so I’ll be focusing on that for a long time… Best to you -AB

  32. akismetuser634755044 Avatar
    akismetuser634755044

    Это победа! И начало к полному исцелению! Я поздравляю Вас и желаю, как можно быстрей встать на ноги, но непременно двигаться и жить полноценной жизнью! Удачи и дальнейших успехов!

    1. arashbayatmakou Avatar

      I had to translate your message from Russian but I got it. Thanks for your support! -AB

  33. BT Avatar

    Fantastic! I love the person talking and laughing in the background – we all feel like her. Your blog is very interesting and succinct – are you writing it yourself?
    Am 44 and your life reminds me so much of mine. In my 20s I climbed mountains, river rafted, horse-packed, ran etc and managed to shape my career at the same time. I thank God that I learnt how strong my body (and will) can be and that kept me going even with a long term illness only just ebbing – just returned from my road run.
    Thanks for sharing your journey

    1. arashbayatmakou Avatar

      Sorry to hear about your illness. I am absolutely writing this blog myself and chronicling this recovery process as best I can. The person in the background was my mother who was very excited. I hope to be back running and doing all of those things soon. Best to you and thanks for reading -AB

  34. beatricecamille Avatar
    beatricecamille

    Congratulations! This is really something worth sharing! Really shows there is hope for everything 🙂

    1. arashbayatmakou Avatar

      I’m honored you say that. Thank you for reading -AB

  35. Nelly Vollebregt-Krap Avatar

    Hallo Arash! This morning when I
    unlocked my phone to see if there was some messages for me. I saw the update for WordPress. So I did. And after I had to see what was new on WordPress. Immediatly I saw Freshly Pressed. I started to read Wiggle Wiggly pinky toe. You really changed my morning, the coffee in front of me on the table turned cold because I had to read more and more and saw a video of your toe and a video presentation by fundraiser speech. And you changed my day!!
    You have great courage and I admire your strength and faith. I believe in you. Keep on going !!! 2013 will be your Happy Walky New Year!!!

    Greetings from me. Nelly Vollebregt.
    I will follow your blog!

    Greetings from me

    1. arashbayatmakou Avatar

      Hi Nelly, Thanks so much for sharing your thoughts. I’m so flattered that my blog could have that kind of effect on you and I hope you keep reading as I continue to write about this process. Happy new year to you too and I look forward to staying in touch -AB

      1. Nelly Vollebregt-Krap Avatar

        Arash, I read your blogs and continue doing it so. I follow your process. I still am so impressed by your strongness and your believe and holding on to it. It will be an example for me in my daily life. I have read now about your biking experience . Hold on Arash ! Keep going on. Because one day I believe you will be on your own bike again. Greetings and lots of love from the Netherlands. Nelly Vollebregt

  36. Life In Multicolour Avatar

    Came across this in ‘freshly pressed’
    Wow! Truly an inspiring story! However it is not finished yet, I have faith in your pinky toe! Looking forward to reading more and hearing how you’re doing.
    X

    1. arashbayatmakou Avatar

      The story is definitely finished! Hope you keep reading -AB

  37. Jade@CoolPads Avatar

    Wishing you a full and excellent recovery.

    1. arashbayatmakou Avatar

      Thanks Jade, I’m looking forward to that -AB

  38. flamidwyfe Avatar

    Reblogged this on Flamidwyfe's Blog and commented:
    Nothing in your day can’t be conquered… Nothing!

    1. arashbayatmakou Avatar

      Thanks for reblogging! -AB

  39. sandeliern Avatar
    sandeliern

    Unbelievable. But I believe the mind can do anything it sets its mind to do. Thanks for sharing and giving hope to many.

    1. arashbayatmakou Avatar

      I share the same belief about the mind. I’m honored to give you hope and hope you keep reading -AB

  40. free penny press Avatar
    free penny press

    The most beautiful video I have seen all week.. yes, you Will walk again..

    1. arashbayatmakou Avatar

      That means a lot to me. Thank you -AB

  41. patriciaddrury Avatar
    patriciaddrury

    the power of the mind and your positive healing thoughts are inspiring my new friend Arash. My husband recovered from a severe fall in 1993, his pain never goes away but his mind, body and spirit are soaring! I am sending you more support and will be following your healing. First a pinky, next… I will be waiting and praying. Namaste.

    1. arashbayatmakou Avatar

      Great to hear Patricia! It is a one step process and I look forward to sharing each accomplishment. Best wishes to you and your husband -AB

    2. arashbayatmakou Avatar

      Thank you Patricia. Happy to hear about your husband and I’m grateful for your support and for reading. Best wishes to you -AB

  42. patriciaddrury Avatar
    patriciaddrury

    Reblogged this on patriciaddrury and commented:
    Inspiring and worth a read my friends…

  43. LuAnn Avatar

    I cried tears of joy for you Arash when I read this. With so many sending healing energy your way, 2013 looks very promising indeed for you. Many blessings to you. 🙂

    1. arashbayatmakou Avatar

      Thank you LuAnn. I hope 2013 is as promising as we want. Best to you -AB

  44. Greta Avatar

    Beautiful!
    And, man,.. so inspiring!

  45. Echo Avatar

    My eldest son, then 25, was stabbed through the brain and left for dead with masive injuries from which they said he would never, could never, recover. Initially paralysed with no balance, no coordination unable to speak, swallow or see clearly. Now 28, I we had a long discussion today .. or rather, he expounded about neurogenesis, proprioceptive as opposed to visual and vestibular balance and neuroplasticity. In his own home, where he manages perfectly well alone with just a little help from me. And last week I watched him take five steps, alone, unsupported.

    I am doing the same demented hobbit dance for you as I did the day I dragged the nurse to his bedside and showed her the movement in his foot which had been dismissed as reflexive… but which he did on command.

    Nothing is impossible 🙂

  46. PiedType Avatar

    Tears in my eyes. I’m so happy for you!!

  47. Here’s to wiggling pinky toes « Pied Type Avatar

    […] some sunshine, an emotional lift? Go read “Wiggle wiggle pinky toe,” new on Freshly Pressed today. It will renew your belief in the indomitable human spirit and […]

  48. kim4true Avatar

    Well done. Your amazing determination and progress is so very exciting and encouraging for everyone, not just those suffering spinal cord injuries.

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